Miranda Mourby
Researcher in Law
Biography
Miranda is a Researcher in Law within the Centre for Health, Law and Emerging Technologies ('HeLEX'). Her work focuses on privacy, confidentiality and data protection in health and life sciences research. She is also the co-chair of the Social Science Division's Research Staff Forum, representing fixed-term researchers within the division.
She is currently working with Professor Jane Kaye and Imogen Holbrook on the UK BrainBioLink project, having contributed to a number of research projects involving secondary uses of health data. Her recent publications include a co-authored Dictionary of Privacy, Data Protection and Information Security.
Miranda joined HeLEX in 2017, as part of the Administrative Data Research Network. Prior to this she practised as a barrister within NHS regulatory law. She retains a broader interest in healthcare law, as well as the mixture of doctrine that makes up personal rights in health data.
Publications
Benton J and others, ‘Using Video Cameras as a Research Tool in Public Spaces: Addressing Ethical and Information Governance Challenges Under Data Protection Legislation’ (2023) 6(2) Journal for the Measurement of Physical Behaviour 145
Bicudo E and others, ‘Patent power in biomedical innovation: technology governance in biomodifying technologies’ (2022) 25(2) Journal of World Intellectual Property 473
MOURBY M and others, ‘Biomodifying the ‘Natural’: from Adaptive Regulation to Adaptive Societal Governance’ [2022] Journal of Law and the Biosciences
Gefenas E and others, ‘Controversies between regulations of research ethics and protection of personal data: informed consent at a cross-road.’ (2022) 25(1) Medicine, Health Care, and Philosophy 23
MOURBY M, O’Cathaoir K and Collin C, ‘Transparency of Machine-Learning in Healthcare: the GDPR & European Health Law’ [2021] Computer Law and Security Review: The International Journal of Technology Law and Practice
Mourby M, ‘’Leading by Science’ through Covid-19: The NHS data store & automated decision-making’ (2021) 5(4) International Journal of Population Data Science
MCKEOWN A and others, ‘Ethical Issues in Consent for the Re-use of Data in Health Data Platforms’ [2021] Science and Engineering Ethics
Morrison M and others, ‘Governance of research consortia: challenges of implementing Responsible Research and Innovation within Europe’ (2020) 16(1) Life Sciences, Society and Policy
MOURBY M, ‘ANONYMITY IN EU HEALTH LAW: NOT AN ALTERNATIVE TO INFORMATION GOVERNANCE’ [2020] Medical Law Review
MOURBY M and MORRISON M, ‘Gene Therapy Regulation: Could In-Body Editing Fall Through The Net?’ [2020] European Journal of Human Genetics
MOURBY M, ‘GOVERNANCE OF ACADEMIC RESEARCH DATA UNDER THE GDPR— LESSONS FROM THE UK’ [2019] International Data Privacy Law
MOURBY M and others, ‘Health Data Linkage for UK Public Interest Research: Key Obstacles and Solutions’ [2019] International Journal of Population Data Science
Bell J and others, ‘Balancing Data Subjects’ Rights and Public Interest Research:’ (2019) 5(1) European Data Protection Law Review 43
BELL J and others, ‘Lawful Disclosure of Administrative Data for Research Purposes in the UK’ [2019] The Journal of Data Protection and Privacy
MOURBY M, Aidinlis S and Smith H, ‘The Data Protection Bill – virtues out of necessity?’ [2017] New Law Journal
Mourby M, ‘Overly exceptional funding: the LAA and Article 6’ [2014] (April) Family Law 524
Mourby M, ‘Domicile in a post-Victorian era’ [2014] Family Law
Mourby M, ‘Capacity to consent to sexual relations - where are we now?’ [2014] Family Law
Bell J, Mourby M and Kaye J, ‘Contractual Mechanisms for Securing the Public Interest in Data Sharing in Public-Private Health Research Partnerships’ 20(2) SCRIPT-ed 325
Mourby M and Molnar-Gabor F, ‘Secondary uses of patients’ data in the European health data space: A UK-German comparison’, Confidentiality, Privacy, and Data Protection in Biomedicine: International Concepts and Issues (2024)
Mourby M and Mackey E, ‘Identity, profiles and pseudonyms in the digital environment’ in B Sloot and S Schendel (eds.), The Boundaries of Data (Amsterdam University Press 2024)
Mourby M and Molnar-Gabor F, ‘Secondary uses of patients’ data in the European Health Data Space’, Confidentiality, Privacy, and Data Protection in Biomedicine (Taylor & Francis)
MORRISON M and others, ‘Reshaping the landscape of science and medicine’ (Science Impact Ltd, 22 February 2019)
Mourby M and Smith H, ‘Engagement and Co-Design: Routes to Lawful Research?’ (Administrative Data Research Conference 2018)
Mansfield K and others, ‘Five models for child and adolescent data linkage in the UK: a review of existing and proposed methods ’ (2020) 23(1) Evidence-Based Mental Health 39 (review)
Bicudo E and others, ‘Patent Power in Biomedical Innovation: Technology Governance in Biomodifying Technologies’
Hartlev M and others, ‘A European standardization framework for data integration and data-driven in silico models for personalized medicine – EU-STANDS4PM’ (EU Project Report 2020)