Miranda Mourby

Researcher in Law

HeLEX: Centre for Health, Law and Emerging Technologies

Biography

Miranda is a Researcher in Law within the Centre for Health, Law and Emerging Technologies ('HeLEX'). Her work focuses on privacy, confidentiality and data protection in health and life sciences research. She is also the co-chair of the Research Staff Forum, representing fixed-term researchers within the social sciences division.

She is currently working with Professor Jane Kaye and Imogen Holbrook on the UK BrainBioLink project, having worked on a number of research projects involving secondary uses of health data. A lot of her work has examined the scope of data protection law, and the re-use of data on an 'anonymous' basis. A recent example is a chapter in an edited collection on the boundaries of data, arguing for a privacy-based approach to the legal definition of 'identity.'

She joined HeLEX in 2017, working as part of the Administrative Data Research Network. Prior to this she practised as a barrister, providing advice and representation to the NHS on a range of patient-related issues. Much of her legal work was in a mental health context, involving patients with fluctuating mental capacity. She retains a broader interest in healthcare law, as well as the mixture of doctrine that makes up personal rights in data.

Publications

Journal Article (20)

Brown A and others, ‘Genetic analysis of blood molecular phenotypes reveals common properties in the regulatory networks affecting complex traits.’ (2023) 14(1) Nature Communications 5062

Benton J and others, ‘Using Video Cameras as a Research Tool in Public Spaces: Addressing Ethical and Information Governance Challenges Under Data Protection Legislation’ (2023) 6(2) Journal for the Measurement of Physical Behaviour 145

Bicudo E and others, ‘Patent power in biomedical innovation: technology governance in biomodifying technologies’ (2022) 25(2) Journal of World Intellectual Property 473

MOURBY M and others, ‘Biomodifying the ‘Natural’: from Adaptive Regulation to Adaptive Societal Governance’ [2022] Journal of Law and the Biosciences

Gefenas E and others, ‘Controversies between regulations of research ethics and protection of personal data: informed consent at a cross-road.’ (2022) 25(1) Medicine, Health Care, and Philosophy 23

MOURBY M, O’Cathaoir K and Collin C, ‘Transparency of Machine-Learning in Healthcare: the GDPR & European Health Law’ [2021] Computer Law and Security Review: The International Journal of Technology Law and Practice

Mourby M, ‘’Leading by Science’ through Covid-19: The NHS data store & automated decision-making’ (2021) 5(4) International Journal of Population Data Science

MCKEOWN A and others, ‘Ethical Issues in Consent for the Re-use of Data in Health Data Platforms’ [2021] Science and Engineering Ethics

Morrison M and others, ‘Governance of research consortia: challenges of implementing Responsible Research and Innovation within Europe’ (2020) 16(1) Life Sciences, Society and Policy

MOURBY M, ‘ANONYMITY IN EU HEALTH LAW: NOT AN ALTERNATIVE TO INFORMATION GOVERNANCE’ [2020] Medical Law Review

MOURBY M and MORRISON M, ‘Gene Therapy Regulation: Could In-Body Editing Fall Through The Net?’ [2020] European Journal of Human Genetics

MOURBY M, ‘GOVERNANCE OF ACADEMIC RESEARCH DATA UNDER THE GDPR— LESSONS FROM THE UK’ [2019] International Data Privacy Law

MOURBY M and others, ‘Health Data Linkage for UK Public Interest Research: Key Obstacles and Solutions’ [2019] International Journal of Population Data Science

BELL J and others, ‘Lawful Disclosure of Administrative Data for Research Purposes in the UK’ [2019] The Journal of Data Protection and Privacy

Bell J and others, ‘Balancing Data Subjects’ Rights and Public Interest Research:’ (2019) 5(1) European Data Protection Law Review 43

MOURBY M, Aidinlis S and Smith H, ‘The Data Protection Bill – virtues out of necessity?’ [2017] New Law Journal

Mourby M, ‘Overly exceptional funding: the LAA and Article 6’ [2014] (April) Family Law 524

Mourby M, ‘Domicile in a post-Victorian era’ [2014] Family Law

Mourby M, ‘Capacity to consent to sexual relations - where are we now?’ [2014] Family Law

Bell J, Mourby M and Kaye J, ‘Contractual Mechanisms for Securing the Public Interest in Data Sharing in Public-Private Health Research Partnerships’ 20(2) SCRIPT-ed 325

Mourby M and Mackey E, ‘Identity, profiles and pseudonyms in the digital environment’ in B Sloot and S Schendel (eds.), The Boundaries of Data (Amsterdam University Press 2024)

Internet publication or blog post (1)

MORRISON M and others, ‘Reshaping the landscape of science and medicine’ (Science Impact Ltd, 22 February 2019)

Conference Paper (1)

Mourby M and Smith H, ‘Engagement and Co-Design: Routes to Lawful Research?’ (Administrative Data Research Conference 2018)

Mansfield K and others, ‘Five models for child and adolescent data linkage in the UK: a review of existing and proposed methods ’ (2020) 23(1) Evidence-Based Mental Health 39 (review)

Morrison M, Mourby M and Bartlett A, ‘Biomodifying technologies and experimental space: organisational and regulatory implications for the translation and valuation of health research’ (2019) ESRC

Bicudo E and others, ‘Patent Power in Biomedical Innovation: Technology Governance in Biomodifying Technologies’

Hartlev M and others, ‘A European standardization framework for data integration and data-driven in silico models for personalized medicine – EU-STANDS4PM’ (EU Project Report 2020)

Research Interests

In addition to the research summarised above, I have led seminars on the Oxford Law Faculty's Bachelor in Civil Law (BCL) on law, technology and health data. I have lectured at a graduate level on the regulation of genomic data, both at Oxford and at Imperial College, London.

At undergraduate level, I taught on the first-year property module at the University of Sheffield, which encompasses an introduction to English land and equity law. I am also repeating some summer school teaching on the regulation of bio-modifying technologies (gene editing, 3D bioprinting and induced pluripotent stem cells).

Research projects & programmes

Centre for Health, Law and Emerging Technologies BioGOV: Governing Biomodification in the Life Sciences EU-STANDS4PM BrainBioLink TrustDNA