Miranda Mourby

Researcher in Law

HeLEX: Centre for Health, Law and Emerging Technologies

Biography

Miranda is a Researcher in Law within the Centre for Health, Law and Emerging Technologies ('HeLEX'). Her work mostly focuses on privacy, confidentiality and data protection in health and life sciences research.

Her current work centres on the TrustDNA (BMBF) project and BioGOV project: mapping the laws, standards and policies which collectively regulate new ‘biomodifying’ technologies such as gene editing. This project is funded by the Leverhulme Trust to provide an evidence base for appropriate, flexible and socially responsive governance in the biotechnology sector. She also helps to lead a Legal and Ethical work package in the Horizon 2020 project EU-STANDS4PM, contributing to standards for in silico modelling within personalised medicine. She provides ongoing support to the DIabetes REsearCh on patient straTification (‘DIRECT’) consortium, and has done some consultancy work on Research Council projects.

She joined HeLEX in 2017, working as part of the Administrative Data Research Network. Prior to this she practised as a barrister, providing advice and representation to the NHS on a range of patient-related issues. Much of her legal work was in a mental health context, involving patients with fluctuating mental capacity. She retains a broader interest in healthcare law

Publications

Journal Article (15)

MOURBY M, BELL J, MORRISON M, and others, ‘Biomodifying the ‘Natural’: From Adaptive Regulation to Adaptive Societal Governance’ [2022] Journal of Law and the Biosciences

MOURBY M, O’Cathaoir K and Collin C, ‘Transparency of Machine-Learning in Healthcare: The GDPR & European Health Law’ [2021] Computer Law and Security Review: The International Journal of Technology Law and Practice

Mourby M, ‘’Leading by Science’ through Covid-19: The NHS Data Store & Automated Decision-Making’ (2021) 5(4) International Journal of Population Data Science

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MCKEOWN A, MOURBY M, HARRISON P, and others, ‘Ethical Issues in Consent for the Re-Use of Data in Health Data Platforms’ [2021] Science and Engineering Ethics

Morrison M, Mourby M, Gowans H, and others, ‘Governance of Research Consortia: Challenges of Implementing Responsible Research and Innovation Within Europe’ (2020) 16(1) Life Sciences, Society and Policy

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MOURBY M, ‘ANONYMITY IN EU HEALTH LAW: NOT AN ALTERNATIVE TO INFORMATION GOVERNANCE’ [2020] Medical Law Review

MOURBY M and MORRISON M, ‘Gene Therapy Regulation: Could In-Body Editing Fall Through The Net?’ [2020] European Journal of Human Genetics

MOURBY M, ‘GOVERNANCE OF ACADEMIC RESEARCH DATA UNDER THE GDPR— LESSONS FROM THE UK’ [2019] International Data Privacy Law

MOURBY M, KAYE J, Smith H, and others, ‘Health Data Linkage for UK Public Interest Research: Key Obstacles and Solutions’ [2019] International Journal of Population Data Science

Bell J, Aidinlis S, Smith H, and others, ‘Balancing Data Subjects’ Rights and Public Interest Research:’ (2019) 5(1) European Data Protection Law Review 43

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BELL J, Wallace S, MOURBY M, and others, ‘Lawful Disclosure of Administrative Data for Research Purposes in the UK’ [2019] The Journal of Data Protection and Privacy

MOURBY M, Aidinlis S and Smith H, ‘The Data Protection Bill – Virtues Out of Necessity?’ [2017] New Law Journal

Mourby M, ‘Overly Exceptional Funding: The LAA and Article 6’ [2014] (April) Family Law 524

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Mourby M, ‘Domicile in a Post-Victorian Era’ [2014] Family Law

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Mourby M, ‘Capacity to Consent to Sexual Relations - Where Are We Now?’ [2014] Family Law

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Internet publication or blog post (1)

MORRISON M, MOURBY M, Bartlett A, and others, ‘Reshaping the Landscape of Science and Medicine’ (Science Impact Ltd, 22 February 2019)

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Conference Paper (1)

Mourby M and Smith H, ‘Engagement and Co-Design: Routes to Lawful Research?’ (Administrative Data Research Conference 2018)

Review (1)

Mansfield K, Gallacher J, Mourby M, and others, ‘Five Models for Child and Adolescent Data Linkage in the UK: A Review of Existing and Proposed Methods ’ (2020) 23(1) Evidence-Based Mental Health 39 (review)

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Other (1)

Morrison M, Mourby M and Bartlett A, ‘Biomodifying Technologies and Experimental Space: Organisational and Regulatory Implications for the Translation and Valuation of Health Research’ (2019) ESRC

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Report (1)

Hartlev M, Mourby M, Ã“ Cathaoir K, and others, ‘A European Standardization Framework for Data Integration and Data-Driven in Silico Models for Personalized Medicine – EU-STANDS4PM’ (EU Project Report 2020)

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Miranda Mourby

Biography

Publications

Research projects & programmes

The proposed Data Governance Act— a New Age of Data Altruism?

A New AI Regulation (& an End to the ‘Black Box’?)

Miranda Mourby

Biography

Publications

Research projects & programmes

Related

Related blogs

The proposed Data Governance Act— a New Age of Data Altruism?

A New AI Regulation (&amp; an End to the ‘Black Box’?)

A New AI Regulation (& an End to the ‘Black Box’?)