Information for Participants

We are very grateful to the people who have given us the benefit of their time and insight to help our project. Interview subjects will have been provided with an ethically approved Participant Information Sheet (PIS) prior to these discussions. If you would like a new copy of the form, please contact Jane Kaye at the University of Oxford.

What follows is a shorter summary, expressed in the terms of Article 13 of the General Data Protection Regulation (‘GDPR’) under which our data subjects have a right to the following details:

Your Data

Personal data, in the form of emails, email addresses and interview transcripts, will be accessible only to members of the project research team. The data controllers are the Universities of Oxford, Sussex and York. Contact details for the Data Protection Officers can be found on the Oxford, Sussex and York websites.

Legal Basis

The data, including transcripts, will be processed for the purposes of completing the BioGOV project and delivering its outcomes, including preparing publications. Data which would identify data subjects will not, however, be included in publications. The research is a task in the public interest within the meaning of Article 6(1)(e) GDPR. We do not intend to collect special category data about data subjects, but if any such information is revealed in interviews we will process this on the scientific research condition, Article 9(1)(j).

Retention

Retention is explained in the PIS:

• Email addresses and contact details will be retained for the project until 2022, and then deleted unless we have another reason for remaining in contact;
• Audio recordings of interviews will be retained for three years after any associated papers are published.
• Transcripts will be retained until 2024, or 2031 if you are an NHS employee. 

Rights

Your rights of access, rectification, erasure of personal data or restriction of processing under the GDPR apply. We will comply with any request made in respect of your personal data unless these are outweighed by scientific exemptions. For example, erasure within the retention period may not be possible if it would seriously impair the project: this will be decided on a case-by-case basis by the Data Protection Officer(s).